Helpline supporting people with rare and complex conditions

Department of Health

The Albanese Government has delivered on another election commitment, with around two million Australians diagnosed with a rare or complex health condition now able to call a dedicated helpline that provides vital information and support that fits their needs.

The RARE Helpline is now fully operational and staffed by a team of dedicated personnel from Rare Voices Australia (RVA) with qualifications in psychology, social work and Mental Health First Aid.

The helpline has been operating in an interim capacity since July 2023 and has already received calls from people in every state and territory, providing advice and information on more than 45 different diseases.

The now fully operational hotline has well trained and compassionate staff that are available to answer questions and can provide:

  • reliable information about particular diseases
  • advice for people seeking a diagnosis
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