Ullakarin Nyberg is a researcher at the Center for Psychiatry Research at Karolinska Institutet. She also works clinically as a psychiatrist, part of the time at a unit for breast cancer patients. At the end of 2018, she contracted the disease herself.
Text: Annika Lund, first published in Medicinsk Vetenskap nr 1 2024 / Spotlight on breast cancer.
Three questions to Ullakarin Nyberg, psychiatrist and researcher at the Center for Psychiatry Research at Karolinska Institutet. In 2018, she was diagnosed with breast cancer, which she describes in her Swedish-language book.
What was it like to suddenly become a patient?
“It was a strong recognition of what patients have told me over the years. It was also a reminder of something important that I actually knew – there are things about the disease that cannot be explained to those who are not affected. A degree of loneliness is part of being seriously ill. You can’t expect others to fully understand what it’s like. It was good that I knew that, because then I didn’t have to be disappointed in people around me. Instead, I was able to accept fairly quickly that some difficulties are exclusive to you, that’s life. Acceptance is an effective way to face difficulties in life”.
Who are you addressing in this book?
“Patients, relatives and staff. Being treated for breast cancer is a daily grind that is quite boring and draining. I wanted to write about how to deal with it so that life is still bearable, a book that is helpful in everyday life. But I am also addressing healthcare professionals and friends and close relatives to the patients. Some people may see things that they have already thought about or are already doing, but have not formulated so clearly for themselves”.
How do you feel about the idea that the disease has brought something good with it?
“I don’t like the romanticism that exists around being affected by difficult things. I would have preferred not to be ill, but now that it has happened, I can share some experiences. And there are aspects that enrich my life in the long term. I have become better at pausing in moments of wonder or joy, to make room for it. If you want to translate that into something professional, it’s about understanding how small cares can mean a lot”.
